Posted by: bibmomma | May 27, 2009

MESSAGE #1 TO UCB SCHWARZ PHARMA


I received this message from a fellow PWP. She is a nurse & is struggling to keep positive while waiting for the NEUPRO patch to return to the United States for distribution.

“I wanted to say how nice it is to lay down and take a nap in the middle of the day and not have my legs and arms start twitching within 20 minutes. I love to be able to eat an apple or an orange before bed time and not have the sugar make me jumpy all night. How it is so pleasant to be able to sit and watch a movie in the evening with my husband… I can curl up with a TV blanket and “lay flat” for the whole show. Not having to take Mirapex is a blessing. I don’t have to live in a fog, I feel alert and bright with my thoughts and activities. Taking Mirapex was a dose titration nightmare. If I took a nap during the day I would take an extra Mirapex and hoped it would let me rest… but I would wake more drowsy and ready to go to bed 3 hours early. If I drank coffee after 11:30 am ate more carb’s or sugary food during the day I was doomed after I took an extra Mirapex.
    With Neupro I am doing crafts, socializing and  eating normal food and drinks anytime of the day. I almost feel a panic attack coming on to think of ever going back on Mirapex.”

So, for my friend, myself and hundreds of others suffering from Restless leg Syndrome and Parkinson’s Disease, PLEASE get this necessary patch approved by the FDA so we can have some relief!


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