These are the thoughts and feelings of a Parkie…. a Texan who has Parkinson’s Disease and happens to be a mom, librarian, bookseller, knitter, photographer and a great cook! I am a life member of the American Library Association and a long-time advocate of Intellectual Freedom. I am also a strong supporter of Emily’s List.
The Tulip is the international symbol for Parkinson’s Disease. This was designed by Karen Painter of Washington state.
*****Picture of mountains taken by Allie on October 12, 2007 between Hesperus, CO and Silverton, CO.
Great site allie!
I believe GOD put people in your life for a reason and I am so glad I had the opportunity to meet you so that you became a part of my life. Will always KIT and remember you!
Love ya,
Camille
P.S. I got the JOB and thanks to YOU!!
By: Camille Robinson on March 12, 2008
at 4:34 am
Great site!
By: PD Warrior on March 25, 2008
at 3:51 am
Hi!
We wanted to thank you so much for putting us on your list of favorite sites!
We hope that we can make you laugh and feel good!
Luv n’ paws,
Mocha and Bijou
By: mochabijou on August 26, 2008
at 5:54 pm
Dear Mocha and Bijou,
You have added so much humor to my boring day! THANK YOU! I have recommended you to all of my readers.
Hugs and kisses,
Allie
By: Allie on August 27, 2008
at 7:29 pm
Dear Allie,
Thank you SO much for writing that post about our blog! We’re happy that we can make you laugh!! We’re going to add your site to our favorites too!!
Thanks again!
Luv n’ paws,
Mocha and Bijou
By: mochabijou on August 28, 2008
at 9:27 am
I have Parkinson’s disease. A friend & I are starting something new – an “Advocacy list.” There are 1,500,000 people with PD in the U.S. And we hope to compile a list of people with PD and their friends & families who are interested in learning about patient-led advocacy issues.
Here is an example of a possible patient-led advocacy issue: there is now a big Cancer awareness project: “Stand up to Cancer.” What if patients with MS and ALS and PD decided to join together to start a similar campaign? Would you want to know about it?
We will not use your name without your permission. We will not share the list with others. We hope you will sign up. Read more about this initiative (and sign up) at the site below:
http://www.advocateslist.org/
Kind regards,
Jean Burns
http://www.pdplan4life.com
http://www.e-advocacy4pd.org
By: pdplan4life on September 8, 2008
at 11:31 pm
Dear Bibmomma,
I hope you don’t mind, but I put your Early Onset Parkinson’s blog page as a link on my own Early Onset dementias page. Not that you have dementia, just that some Parkinson’s sufferers do end up with dementia and I wanted to provide them with a link to a blog that they might be able to relate to. This is the page I posted it to:
http://early-onset-dementia.blogspot.com/
If you do have objections let me know and I will remove it immediately. My reason for putting it there is because I am trying to collate a site that has as much support information as possible for people with early onset dementias (it is quite hard to find stuff about Parkinson’s dementia however – if you have any hints…!?).
If you want to know why I am doing this you can read my story (my Dad has had early onset Alzheimer’s for the past 10yrs) on my other page:
http://site.dementia-news.com/about_us.html
I also have a news page which I update daily..this is my main focus for now:
http://dementia-news.blogspot.com/
Anyways, as I said, if you don’t want to be on my site, let me know. You can email me at admin@dementia-news.com.
Kind Regards,
Natalie
By: touchedbydementia on October 26, 2008
at 6:47 am